Adults with VCFS - 22q deletion - Facebook group
Adults Living with VCFS - Yahoo Groups
For Adults living with VCFS/DiGeorge syndrome. I am 33 yrs old just found out that I have this syndrome this spring. This Group is for other's with VCFS/DGS to come and talk about daily struggles of living with DiGeorge Syndrome. We also have sister group at:22q11syndromefor2ormoreaffected@yahoogroup.com
and 22q_exchange@yahoogroup.com
VCFS Awareness - Facebook group
VCFS - Knowledge is Hope Facebook group
Friends of Quinn
Where Learning Disabilities meet support
22q Exchange - Yahoo Groups
This is a support group for families and individuals dealing with the challenges of 22q Deletion Syndrome (also know as 22q11 Deletion Syndrome, DiGeorge Syndrome or VCFS). This syndrome affects people in a wide variety of ways and we recognize the need to allow people to connect with and support each other. Therefore, we encourage open, respectful communications on all aspects of this condition.
VCFS DiGeorge Syndrome - My Space Group
|